The Motherhood

On May 10, 2011, in honor of Food Allergy Awareness Week, moms gathered to trade allergen-free recipes and talk about cooking to accommodate food allergies.

 

“Eating and celebrating should always be an inclusive, shared experience…not exclusive only to those who do not have food allergies/dietary restrictions!” said host Lori Sander, founder of Divvies Bakery and author of The Divvies Bakery Cookbook.

 

And having allergies doesn’t mean restricting your exposure to new, allergen-safe foods, either.  “I add a new food item a week to my diet,” said Sloane Miller, Allergic Girl. “Either recipe, new variety of fruit or vegetable or new treat (like safe cookies/cakes). I do this safely with the assistance of a knowledgeable RD (eatright.org) and/or board certified allergist (aaaai.org, acaai.org).”

 

Continue reading for a virtual cookbook of allergen-free recipes!

 

PLEASE NOTE: Recipes will vary in terms of which of the 8 most common allergens are eliminated.

 

 

Advice for cooking for food allergies

 

“When planning celebrations, planning ahead and choosing a recipe that will appeal and be safe for everyone is key!” said Lori Sandler, Divvies.

 

“I find that it is essential to also find out if the people have issues with cross-contamination,” added Alisa Fleming, Go Dairy Free. “My kitchen isn’t safe for, say, severe gluten issues, since I do use both gluten-free and wheat flours in it (dust can be an issue for some!), so I make sure any guests with severe allergy concerns have a hand in food preparation (from their own safe kitchen) if needed.”

 

“Talk with your board certified allergist about what you can’t eat but also what you can!” said Sloane Miller, Allergic Girl. “Post your allergy action plan in your kitchen for easy access. Also save it on to your or your child’s smart phone (as a PDF) for easy access on the go.”

 

 

Breakfast options

 

Coffee Cake: http://www.chicagoparent.com/recipes/nut-free-cinnamon-streusel-sour-cream-coffee-cake (from Jenny Kales, Nut Free Mom)

 

Dairy/egg/nut free Banana Chocolate Chip Muffins: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491373 (from Jennifer)

 

Wheat free Banana Mini Muffins: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491430 (from Willing Cook)

 

Cranberry Orange Scones: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491395 (from Colette Martin)

 

Egg/dairy/nut free Banana Pancakes: http://allergickid.blogspot.com/2010/09/challengeand-banana-pancakes.html (from Libby, The Allergic Kid)

 

Nut free Doughnuts: http://nut-freemom.blogspot.com/2011/05/peanut-allergy-safe-doughnuts-youve-got.html (from Jenny Kales, Nut Free Mom)

 

Dairy/egg/nut free Donuts: http://www.speedbumpkitchen.com/2011/03/paczi-for-all.html (from Meg-Speedbump)

 

 

Raisin Bread: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491456 (from GidgetKat)

 

Gluten free Vegan Baked Cake Donuts: http://www.cybelepascal.com/?p=1718

 

 

Appetizer options

 

Chickpea/sesame free Hummus: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491331 (from Debra Finkel)

 

Gluten/soy free Chinese Dumplings: http://www.jeanetteshealthyliving.com/2011/04/gluten-free-recipe-for-chinese.html (from Jeanette)

 

 

Dairy/soy free Roasted Artichoke Garlic Spread (good substitute for mayonnaise): http://www.jeanetteshealthyliving.com/2011/04/warm-roasted-garlic-and-artichoke.html (from Jeanette)

 

Dairy free Creamy Soup recipes: http://www.jeanetteshealthyliving.com/2011/03/collection-of-pureed-soups-curried.html (from Jeanette)

 

 

Minestrone Soup: http://on.fb.me/divviesminestrone (from Lori Sandler)

 

 

Dinner options

 

Turkey Tacos: http://bklynallergymom.wordpress.com/2011/03/05/allergy-free-turkey-tacos/ (from Heidi Bayer, Brooklyn Allergy Mom)

 

Divvies Really Delicious and Simple Chicken Dish: https://www.facebook.com/notes/divvies-bakery-divvies-bakery-cookbook/recipe-divvies-simple-delicious-chicken/195891023789294 (from Lori Sander)

 

Boar’s Head (Top-8 Free) EverRoast Chicken Breast & Golden Raisin Quinoa Pilaf: http://allergicgirl.blogspot.com/2011/05/boars-head-allergic-girl-recipe.html (from Sloane Miller, Allergic Girl)

 

 

Pizza: http://www.learningtoeatallergyfree.com/2011/03/new-twist-on-pizza-inspired-by-fellow.html (from Colette Martin)

 

Bolognese Sauce: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491352 (from Jenny Kales, Nut Free Mom)

 

Lamb Stew: http://bklynallergymom.wordpress.com/2011/01/25/allergy-free-lamb-stew-recipe/ (from Heidi Bayer, Brooklyn Allergy Mom)

 

Top-8 free Batter for Chicken, Fish or Vegetables: http://willingcook.com/here-fishy-fishy/ (from Willing Cook)

 

Wheat/dairy/nut/peanut free Moroccan Meatball Stew: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491386

 

Egg free Meatloaf: http://www.thismamacooks.com/2010/09/boulder-firefighters-meatloaf.html (from Anne-Marie Nichols, The Write Spot)

 

Pasta Sauce with Basil and Stuffed Peppers: http://nut-freemom.blogspot.com/2010/07/nut-free-food-allergy-friendly-summer.html (from Jenny Kales, Nut Free Mom)

 

Basil and Marinated Artichoke Pesto: http://allergickid.blogspot.com/2008/07/basil-marinated-artichoke-pesto.html (from Libby, The Allergic Kid)

 

 

Side dish options

 

Dairy/wheat/egg/peanut/nut free Mashed Potatoes: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491369 (from Emily Paster, West of the Loop)

 

Top-8/gluten free Mac n’ Cheese: http://www.cybelepascal.com/?p=2723 (Cybele Pascal)

 

Irish Soda Bread: http://nut-freemom.blogspot.com/2011/03/peanut-allergy-friendly-nut-free-irish.html (from Jenny Kales, Nut Free Mom)

 

Dairy/egg free bread: http://www.speedbumpkitchen.com/2008/10/mission-bread-by-noon.html (Meg-Speedbump)

 

 

Cheese free Risotto: http://www.thismamacooks.com/tag/rice-cooker (from Anne-Marie Nichols, The Write Spot)

 

 

Desserts

 

Divvies Brownie Recipe: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491340 (from Lori Sandler)

 

Watch Lori make her brownies on the CBS Early Show!

 

Double Chocolate Brownie Bites: http://allergickid.blogspot.com/2011/01/double-chocolate-brownie-bites.html (from Libby, The Allergic Kid)

 

Classic Crumb Cake: http://www.cybelepascal.com/?p=2768 (from Cybele Pascal)

 

 

Nut-free “Nutella”: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491317 (from Jenny Kales, Nut Free Mom)

 

“And for those allergic to Sunbutter (sunflower), you can substitute Soy Butter, Pea Butter or something that works for your needs” in the Nutella recipe, suggested Aly AllerDine.

 

Nut-free alternative to Easy Bake Oven mixes: http://www.chicagoparent.com/recipes/nut-free-easy-bake-oven-mix (from Jenny Kales, Nut Free Mom)

 

“That’s genius! What a thoughtful way to make that toy available to all little kids,” said Libby, The Allergic Kid.

 

Dairy/egg/sugar free raspberry mousse: http://www.thismamacooks.com/2011/03/no-dairy-no-eggs-and-no-sugar-raspberry-mousse.html (from Anne-Marie Nichols, The Write Spot)

 

 

Divvies Chocolate Covered Strawberries: http://on.fb.me/divviesstrawberries (from Lori Sandler)

 

Oh! Fudge: http://www.divvies.com/images/cookbook/OhFudgetRecipe.png (from Lori Sandler)

 

Gluten/dairy/egg free Coconut Pineapple Scone: http://www.jeanetteshealthyliving.com/2011/05/glutendairyegg-free-coconut-pineapple.html (from Jeanette)

 

 

Pies

 

Divvies Quick and Easy Apple Pie: https://www.facebook.com/notes/divvies-bakery-divvies-bakery-cookbook/recipe-divvies-quick-easy-apple-pie-from-the-divvies-bakery-cookbook/195895503788846 (from Lori Sandler)

 

Allergy-Free Boston Cream Pie: http://www.foodallergy.org/page/allergy-free-boston-cream-pie (from Cybele Pascal)

 

 

Cakes

 

Wacky Cake, “free of dairy and eggs due to the rationing of butter and eggs in the Depression era”: http://www.kidswithfoodallergies.org/featured_recipe5.php (from Felicia Carter, Go Graham Go)

 

Dairy/soy free Cheesecake: http://www.cookingwithoutingredients.com/cheesecake.htm

 

Chocolate Cake with Mega Chunks and Buttercream Frosting: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491325 (from From Heidi Bayer, Brooklyn Allergy Mom)

 

Divvies Chocolate Cupcakes: http://www.marthastewart.com/255869/divvies-chocolate-cupcakes (from Lori Sandler)

 

Divvies Vanilla Frosting: http://www.marthastewart.com/254510/divvies-vanilla-frosting (from Lori Sandler)

 

If you go to my site www.cornerofmyworld.com/cupcake you will see some really cool ideas on how to decorate our Divvie’s cakes and cupcakes. (Lisa Staffieri)

 

Top-8 and gluten free Red Velvet Cake: http://www.cybelepascal.com/?p=1988 (from Cybele Pascal)

 

 

Ice Cream

 

Egg/dairy/nut free Bubblegum Ice Cream: http://www.speedbumpkitchen.com/2010/04/double-dessert.html

 

Superman Ice Cream: http://www.speedbumpkitchen.com/2010/07/superman-ice-cream.html

 

 

Dairy free Soft Serve/Smoothie, also good with SunButter for those with nut allergies: http://www.onefrugalfoodie.com/2010/06/15/peanut-butter-smoothie/ (from Alisa Fleming, Go Dairy Free)

 

 

Cookies

 

Gluten/dairy/egg/soy free Quinoa Chocolate Chip Cookies: http://www.jeanetteshealthyliving.com/2011/05/glutendairyeggsoy-free-vegan-quinoa.html (from Jeanette)

 

 

Egg free Pumpkin Cookies (can be gluten-free by substituting gluten-free flour mix): http://www.thismamacooks.com/2010/11/an-egg-free-chocolate-chip-pumpkin-cookie.html (from Anne-Marie Nichols, The Write Spot)

 

Chocolate Explosion Oatmeal Cookies: http://www.alisacooks.com/2010/07/23/chocolate-oatmeal-cookies/ (from Alisa Fleming)

 

Egg/peanut free Sugar Cookies: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491410 (from Gabrielle)

 

Dairy/egg free Divvies Cut-Out Sugar Cookies: https://www.facebook.com/note.php?created&&note_id=195882950456768&id=111702808852602#!/note.php?note_id=188653434513053 (from Lori Sandler)

 

 

Holiday desserts

 

Nut/peanut/egg free Swedish gingersnap: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491316 (from Emily Paster, West of the Loop)

 

Wheat/dairy/nut/peanut free Chocolate Mint Meringues Kisses: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491330 (from Emily Paster, West of the Loop

 

Nut free Snowball Cookie: http://www.chicagoparent.com/recipes/snowballs (from Jenny Kales, Nut Free Mom)

 

Chocolate Crinkles: http://tmotherhood.wpengine.com/talk/show/id/62182/view/single/post/491393 (from Kristen)

 

 

Snack options

 

Gluten/oat/casein/soy free “Clif” Granola Bars: http://www.jeanetteshealthyliving.com/2011/03/glutenoatcaseinsoy-free-clif-granola.html (from Jeanette)

 

 

Favorite Products for Cooking at Home

 

In addition to sharing recipes, the group discussed their favorite allergen-free products for cooking or baking at home.

 

“I could not live without Fleischmann’s unsalted dairy-free margarine, plain soy milk and allergy-free chocolate chips from Divvies or Enjoy Life,” said Emily Paster, West of the Loop.

 

Jeanette added, “I use So Delicious Coconut Milk (dairy/soy/nut free) and coconut oil (dairy/soy free). I love Enjoy Life chocolate chips (dairy/soy free)!”

 

“Vermont Nut-Free Chocolate has a great nut-free baking line,” noted Jenny Kales, Nut Free Mom. “Of course Divvies is delish for egg, dairy and nut allergies. I also use Nielsen-Massey Vanilla extract. Safe for nut allergies – facility is nut-free.”

 

“Non-dairy yogurt is one of my favorite ingredients,” said Libby, The Allergic Kid. “It has a nice tang & bulk for replacing eggs & dairy products. Ground flax, especially mixed with hemp milk if I want to make a ‘nutty’ flavor, is another one.”

 

“I love having lots of solid fat options available for experiments,” added Meg, Speedbump Kitchen.  She suggested “Fleischmann’s unsalted margarine, a big tub of coconut oil (from Amazon), Crisco shortening sticks, butter flavored Crisco shortening sticks (yes, dairy-free), Spectrum non-hydrogenated shortening (pricey, but nice to work with).”

 

And looking on the bright side, “the nice thing about having an egg allergy is that eating the batter won’t give you salmonella!” said Aly Allerdine. “I like to substitute eggs in normal recipes by using various ingredients: apple sauce, banana, corn starch or Ener-G Egg replacer.”

 

“I also like to make egg replacer with flax seed meal,” added Colette Martin. “Grind down flax seeds or use the meal. Mix 1 tbsp flaxseed meal with 3 tbsp warm water for each egg. Mix and let sit for about five minutes until it gels.”

 

 

Dining out

 

When it comes to food allergies, dining out can be a tricky and often dangerous proposition.

 

“I think the restaurant industry really needs more awareness and training. I know how to read labels in stores to keep my daughter safe, but dining out remains our biggest challenge,” said Emily Paster, West of the Loop.

 

Agreed Suzanne, “I’ve found that with my tomato allergy – um, just plucking them off a pre-prepared salad doesn’t cut if folks! And that happens MOST of the time, even when I explain to the waiter. My experiences make me fear for my son with his more severe allergy.”

 

AllerDine is one excellent resource for finding restaurants that cater to people with food allergies: http://www.AllerDine.com

 

AllerDine restaurant toolkit: http://allerdine.com/toolkit.php

 

AllerDine on Facebook: http://www.facebook.com/pages/AllerDinecom/190364131380

 

Allergic Girl’s tips for dining out are in the new U.S. issue of Allergic Living: http://www.allergicliving.com

 

 

Other Resources

 

MSNBC report on food allergies, featuring Nicole Smith, Allergic Child: http://www.msnbc.msn.com/id/21134540/vp/42949676#42937966

 

Recipe index from Libby, The Allergic Kid: http://allergickid.blogspot.com/p/recipes.html (All of the recipes are peanut, tree nut, egg, dairy, shellfish and red meat free. I’ve also notated on the index which ones are gluten free, vegan or gf or vegan adaptable)

 

Cybele Pascal, Allergen-Free Cuisine (posts a new allergy-free recipe every week): http://www.cybelepascal.com

 

Free monthly newsletter from Nicole Smith, Allergic Child: http://www.allergicchild.com/newsletter.htm

 

 

Cookbooks

 

The Divvies Bakery Cookbook by Lori Sandler: http://www.divvies.com/cookbook.php

 

Allergen-Free Baker’s Handbook by Cybele Pascal: http://amzn.to/jsH2XX

 

Food Allergies For Dummies by Robert A. Wood MD, Joe Kraynak: http://amzn.to/jcq6iq

 

Ten recipe e-book – in honor of Food Allergy Awareness Week, you can download Colette Martin’s Allergen-Free Holiday Cookbook, which contains ten recipes free of the top eight allergens and gluten, free on Smashwords. Use coupon code VP36S: http://www.smashwords.com/books/view/27640

 

Allergic Girl by Sloane Miller: http://amzn.to/AllergicGirl

 

Food Allergy Mama’s Baking Book by Kelly Rudnicki: http://www.foodallergymama.com/baking-book-cookbook/

 

 

Thank you to our fabulous host, Lori Sandler, and to all of our amazing co-hosts!!!

 

Nicole Smith, Allergic Child

Kelly Whalen, Centsible Life

Alisa Fleming, Go Dairy Free

Libby, The Allergic Kid

Anne-Marie Nichols, The Write Spot

Emily Paster, West of the Loop

Jodi Grundig, Mom’s Favorite Stuff

Eleanor Garrow, Food Allergy and Anaphylaxis Network

Sloane Miller, Allergic Girl

Clarissa Nassar, The POSHpreneur

Cybele Pascal, Allergen-Free Cuisine

Caryn Bailey, Rockin’ Mama

Jenny Kales, Nut Free Mom

Aly, AllerDine

Heidi Bayer, Brooklyn Allergy Mom

Meg, Speedbump Kitchen

Carmen Staicer, Mom to the Screaming Masses

 

 

See the original Talk here: http://tmotherhood.wpengine.com/talk/show/id/62182

On May 3, 2011, parents of children with food allergies came to TheMotherhood to swap ideas and learn how to advocate for a safe school environment for their kids.

 

The session was hosted by Lori Sandler, founder of Divvies Bakery and author of The Divvies Bakery Cookbook; Gina Clowes, founder of Allergy Moms, www.allergymoms.com; Barbara Rosenstein from the Food Allergy Initiative, www.faiusa.org (the world’s largest private source of funding for food allergy research); and Maria Acebal from The Food Allergy and Anaphylaxis Network, www.foodallergy.org.

 

Gina Clowes started the discussion by sharing her most popular download, which parents can print and share with teachers.  It is called “10 Things Children with Food Allergies Want You to Know”: http://www.allergymoms.com/uploads/newsletters/everychildwish.html

 

“I have a whole eBook that takes it even further and can help to educate caregivers,” Gina commented, sharing the link: http://www.allergymoms.com/10things.html

 

 

Advocating a safe environment for your child

 

“Communication with the school is so important. Especially if it is a large school,” said Felicia Carter, Go Graham Go. “Keep in mind that most states are facing hug budget cuts which means bigger class sizes. So, now it is more important than ever!”

 

Lori Sandler suggested, “Approach the school in the spring before the next school year begins. Introduce yourself, schedule meetings with the principal, teachers and school nurse. Introduce your child to his teacher before the school year begins so they may build a rapport.”

 

Maria Acebal, The Food Allergy and Anaphylaxis Network, added that the key to her daughter’s “continued safety and my sanity has been annual staff training. The Safe@School presentation for educators available through the FAAN website is what I have used for years at my daughter’s own school.”  Here is the website: www.foodallergy.org

 

“This is a great suggestion. A lot of parents don’t realize that when it comes to their child’s allergies, THEY are the experts and can use that knowledge to help the school,” agreed Elizabeth Thielke, A Mommy Story. “Offer to help with training, offer to write up a guide to your child’s allergies, or come speak to your child’s class about food allergies. Be not only an advocate but an educator as well – for schools that have limited budgets and limited resources, offering yourself as a resource could be a huge help to them.”

 

And for those moments when you encounter unsympathetic administrators and people who don’t understand the seriousness of your child’s food allergy, “I’d recommend the book From Emotions to Advocacy by Pete Wright and that you look at the website www.wrightslaw.com,” said Gina Clowes, Allergy Moms.

 

Libby, The Allergic Kid, added that winning a safe environment for your child at school might require “polite persistence. Keep moving up the ladder. When I run into a brick wall, I ask, who do I need to see to have this approved? Or, do you have any suggestions for me when I speak to so-and-so (next person up) in order to have this approved?”

 

“We had our allergist write a letter stating the need for accommodations for our son to safely go to school,” said Nicole Smith. “This began the 504 Plan discussions. He’s in high school now and still has a 504 Plan.”

 

 

Putting a 504 plan in place

 

What is a 504 plan?

 

“Section 504 of the Rehabilitation Act of 1973, which is a anti-discrimination law,” explained Thanita. “A student with a disability like food allergies can obtain a 504 plan to keep the child included and have equal access to Free & Appropriate Public Education (FAPE) in the least restrictive environment the same as their non-disabled peers.”

 

“Schools have a tendency to think about 504 just for physical or mental disabilities,” said Colette Martin, but “a 504 plan helps students who have things like allergies, asthma, diabetes and more,” said co-host Felicia Carter. “It is a plan that follows them through school and provides accommodations where they are needed.”

 

If you are not familiar with the details of 504 plans, “go to the U.S. Department of Education website and download the definition for a 504. You will most likely be able to qualify your child after reading this document,” advised Cheryl.

 

Maria Acebal noted, “Any school, public or private, that receives federal funding (i.e., a lunch or milk program) is subject to Section 504 of the Rehabilitation Act of 1973. And, for private schools not covered by 504, the Americans with Disabilities Act provides similar protections. (Religious private schools are exempt.)”

 

And there is a distinction between Individual Health Plans (or Individual Emergency Plans) and a 504 plan. “We use our IHP – Individual Health Plan – to outline emergency procedures should our son have a reaction,” said Nicole Smith. “The 504 Plan outlines accommodations.”

 

“Other adults can be trained to care for your child,” noted Gina Clowes. “Yes, a full time nurse is wonderful to have, but your child can still be kept safe.   A solid 504 plan or other written plan with a number of trained adults is a good place to start.  Studies show that when caregivers are trained to avoid, recognize and treat allergic reactions, the frequency and severity of reactions decreases.”

 

Gina added, “Severe allergies need to be taken seriously. It’s an invisible disease (mostly). Our kids look healthy, and you’d never know that cross contamination or breathing in the wrong food could cause this healthy-looking child serious harm.”

 

Here are a few more resources on 504:

 

Parent Advocacy Brief: Very Important Information on Section 504 and ADA
http://www.ncld.org/images/stories/Publications/AdvocacyBriefs/UnderstandingADAAA-Section504/UnderstandingADAAA-Section504.pdf

 

Compliance to Section 504 is not optional
http://www.wrightslaw.com/blog/?p=53

 

Section 504 FAQ from the Office of Civil Rights
http://www2.ed.gov/about/offices/list/ocr/504faq.html

 

 

Devising a plan for your child at school

 

Maria Acebal, who is FAAN’s General Counsel, offers these suggestions to consider when devising a good school plan:

 

What is a food allergy?
What causes an allergic reaction?
What are some of the symptoms of an allergic reaction?
What is the recommended treatment?
What is on my child’s Food Allergy Action Plan?

 

“Even if your state doesn’t have food allergy school guidelines, it can be helpful to use other states’ guidelines as a resource,” added Barbara Rosenstein, Food Allergy Initiative. “These are based on best practices developed by experts.”  http://www.faiusa.org/page.aspx?pid=407

 

 

Allergy safety: nut-free schools

 

“Schools that claim to be nut-free … what are we looking at?” asked Vish. “Do they just not serve nuts? What happens if a child bring PBJ sandwich for lunch? Is the lunch sent back home? My question really is – what do they promise?”

 

“I assume the school will have to decide if it’s just visible nuts or includes items that could contain nuts (cross contaminated foods), etc.,” answered Thanita.

 

“It depends. My son went to a ‘nut-free’ preschool and got a full-sized Snickers bar in a treat bag once. Human error,” added Gina Clowes. “I like to start with a really solid written accommodation plan (my preference is a Section 504 plan) and then move on to other school-wide policies.”

 

EBrady reminded everyone that “risk reduction in ANY way never means risk FREE. However . . . risk reduction and improving safety with improved outcome ought to be the goal!”

 

“I think there are many valid approaches to food allergy safety, and restricting foods in classrooms or schools is one of them,” said Maria Acebal.

 

Agreed Gina Clowes, “I think about 20% of U.S. schools are peanut free, but you do not have to have a peanut [or other allergen] free school to keep your child safe!”

 

 

Allergy safety: keeping Epi-pens nearby

 

If your child attends a school where there is a chance he or she could be exposed to their allergen, you should insist that an Epi-pen be kept nearby and accessible.

 

Many schools will keep Epi-pens in a locked cabinet, but “there are other, valid alternatives to keeping other students away from medications without a locked cabinet,” said Maria Acebal. “If you are told that it is ‘regulations,’ ask for a copy of the exact regulation being referenced.”

 

“I am in Chicago, and we were told that the Epis were only stored in the office and it was non-negotiable,” said Jan. “It was also non-negotiable to me that the Epis/inhalers [needed to be] in the classroom – so I first raised a stink at the nurse level, then the principal level. After I told them that I would take it to Chicago Public School board – they suddenly changed their mind. Push forward until you get what is best for your child.”

 

For older children, “Most states allow children to self-carry the epinephrine autoinjectors (Epi-Pens) if they can self-administer,” said Gina Clowes. “There are a handful of states that have not passed a ‘self-carry’ law yet.  However, even in these states, the district can allow the child to self-carry.”

 

Here is a listing of all the states and the relevant laws pertaining to self-carry: http://www.foodallergy.org/page/legislation

 

Helping nonbelievers understand allergies

 

“We are our children’s greatest champions when it comes to their emotional and physical safety,” said Lori Sandler.  That means overcoming administrative obstacles and educating those who don’t believe in the dangers of food allergies.

 

“One important thing to remember is all this is a PROCESS,” said Maria Acebal. “One conversation won’t do it. It takes multiple calm, confident communications.”

 

As an educational tool, Maria also suggested showing “the video produced by FAI called ‘Someday.’ It’s on YouTube. It has children talking about what it’s like to have food allergies.”

 

http://youtu.be/AzyLv2IKoGA

 

Michelle compares peanuts to germs to get the idea of food allergies across to those who don’t “get” it. “You can’t see them, but if my kid touches the ‘germ,’ invisible peanut residue, he could become sick. I see lots of light bulbs go off,” she said. “People understand the invisible germ and how it can make them sick, and they know that they should wash their hands and be mindful of them. Now they can be aware that food can be a problem for some people” in a similar way.

 

You can also team up with other parents who have kids with food allergies to unify your efforts.

 

“I started a Food Allergy Group at our school a few years ago. We were able to put several policies in place to help our kids,” said Cheryl. “First of all, we implemented the ‘blue form.’ Any food coming into the school for parties, birthdays or holidays must be written on this form and sent into the school at least three days in advance so that food allergic kids’ parents can provide a similar snack. If it is not on the blue form, it is not allowed in the school. We have also limited the amount of food coming in – holiday parties can have one healthy snack and one not so healthy snack. Teachers are not allowed to give out food in the classroom to prevent exclusion of food allergic kids.”

 

 

Starting kindergarten with food allergies

 

It can be especially difficult to send a food allergic child to school for the first time – in kindergarten or Pre-K.  There are steps you can take to increase safety at school for young children with food allergies.

 

“I believe it’s never too early to teach a child to advocate for their food allergies,” said Jenny Kales, Nut Free Mom. “I’ve found that it really helps kids to stay safe if they can speak up and ask questions, ask for help.”

 

Agreed Elizabeth Thielke, A Mommy Story, “My daughter is only 6, but she’s beginning to understand that certain foods make her sick. By constantly talking to her about which foods aren’t good for her, she’s learning how to recognize them and occasionally even remembers to refuse them.”

 

“Teach your child to recognize symptoms of allergic reactions,” added Lori Sandler. “It is critical for children to know the symptoms of mild and severe allergic reactions, and have key people they feel comfortable turning to (including school nurses, teachers, coaches and friends), without hesitation.”

 

“I have info here that you might be interested in to help you with kindergarten. It is scary to start the process, but you can do it!” said Nicole Smith. http://www.allergicchild.com/foodallergyandschools.htm

 

Additional resources:

 

10 Things to know about food allergies in the classroom
http://www.healthcentral.com/allergy/c/48542/103188/things-classroom
5 Tips for food allergies at school
http://www.healthcentral.com/allergy/c/48542/83444/taking-allergies
Protecting your child from food allergies at preschool
http://www.healthcentral.com/allergy/c/48542/67942/protecting-child
Helping adults “GET” that food allergies are a matter of life and death
http://www.healthcentral.com/allergy/c/48542/70066/helping-allergies

 

 

Feeling left out

 

In addition to physical health safety, you should keep your child’s emotional health in mind.  Their food allergies may cause them to feel excluded and isolated.

 

“My son hated the idea of a separate table,” said Libby, referring to the nut-free cafeteria table that some schools set aside for kids with allergies. “He has a designated spot at the end of his class’s table that is wiped down before he sits there. Sometimes he’s at the end by himself, but if his friends don’t have peanut butter or milk, they sit next to him.”

 

“I was concerned about the nut-free table too,” said Jodi Grundig, Mom’s Favorite Stuff, “but in my daughter’s kindergarten, it’s become a very close-knit group of friends and I feel comfortable sending my daughter to their houses for playdates because their parents are vigilant too.”

 

Apart from lunch, when snacks are offered in the classroom, you can ask to be alerted ahead of time and prepare a similar allergen-free snack for your child.  It’s even better to avoid food in the classroom altogether when possible.

 

“Here’s a site that offers some helpful non-food ideas for school events, Halloween, etc.,” said Barbara Rosenstein. http://greenhalloween.org/content.php?page=treats#treats

 

 

Additional Resources

 

“I wrote this piece in Newsweek’s “My Turn” column a few years ago,” said Becki. “Yeah, I plan to hand it to my daughter’s teacher next year…and every year.” http://www.newsweek.com/2008/05/31/a-plea-for-my-daughter.html

 

“We parents of children with food allergies need to be reasonable ourselves!” said Allergic Child. “Check out this article I wrote about our experience.” http://www.allergicchild.com/reasonableaccommodations.html

 

 

Thanks to our wonderful hosts:

 

Lori Sandler, Divvies

Gina Clowes, Allergy Moms

Barbara Rosenstein, Food Allergy Initiative

Maria Acebal, The Food Allergy and Anaphylaxis Network

 

And fabulous co-hosts:

 

Elizabeth Thielke, A Mommy Story

Felicia Carter, Go Graham Go

Libby, The Allergic Kid

Jodi Grundig, Mom’s Favorite Stuff

 

 

See the original Talk here: http://tmotherhood.wpengine.com/talk/show/id/62181

On April 26, 2011, a number of women came to TheMotherhood to join Marion Groetch, MS, RD, CDN, senior dietitian at the Jaffe Food Allergy Institute at Mount Sinai School of Medicine, and a recognized nutrition authority in the field of food allergies, to learn about common myths and misunderstandings involving food allergies.

 

“We hope today’s Talk helps clarify the facts, not the myths associated with managing food allergies,” said Lori Sandler, founder of Divvies Bakery and author of The Divvies Bakery Cookbook, who hosted the class with Marion.

 

A lively and insightful discussion followed.  Read on to learn about common food allergy myths and realities, or click the “View Talk” button to read the entire conversation!

 

 

Myth #1

 

Food allergy and food intolerance are the same thing.
Reality: Food allergy and food intolerance are not the same.

 

According to host Marion Groetch, “Food allergy is defined as an adverse reaction caused by an immune response that occurs reproducibly on exposure to a given food.
“While food intolerance is an adverse reaction to a food, it is not mediated by the immune system. Lactose intolerance is a good example of a food intolerance. It is caused by a deficiency of the lactase enzyme, which makes digestion of the milk sugar, lactose, difficult. The immune system is not involved.”

 

“I think this myth makes it MUCH more difficult for people with food allergies,” said participant Christy, More Than Mommy. “Many people believe that it’s a trivial issue because people claim they have allergies when they don’t.”

 

Agreed co-host Anne-Marie, The Write Spot, “Totally understand the difference now that I’ve developed sensitivities while my daughter has to deal with nut allergies. But most people don’t get it. It’s up to us, I guess, to educate about the difference and how the body reacts to allergies (can be life threatening) than sensitivities (painful, but probably won’t kill you).”

 

 

Myth #2

 

 

It’s easy to manage a food allergy … just avoid the food!
Reality: Allergen avoidance is not always straightforward. There are many nuances even to something as simple as label reading.

 

Avoidance means diligence in the grocery store, in the home kitchen, in restaurants, while visiting friends or going to school or camp … avoidance is part of every day life for families with food allergy.

 

“My son gets upset” about avoiding foods containing his allergen, said co-host Carmen, Mom to the Screaming Masses, “but he does understand that he has an allergy. I try to make a safe alternative – I made peanut butter cups for Easter and made soy butter ones as well – he was really happy.”

 

On the other hand, “my daughter doesn’t want to be itchy again and is happy to do anything to avoid that,” pointed out co-host Jodi, Mom’s Favorite Stuff.

 

As for those who believe food allergies can be cured, “there is NO cure for food allergy!” said host Lori Sandler. “Avoidance of the identified allergen is the only way to prevent food allergic reactions.”

 

“I think people hear about ‘treatments’ in the news and confuse that word with ‘cure,’” added participant Susan, Peanuts in Eden.
Host Marion Groetch noted, “Through the Consortium of Food Allergy Research, we have developed an extensive food allergy education program that is free and downloadable. There are handouts on all of these topics and a short video that reviews the highlights of the program.”
Here is the website: https://web.emmes.com/study/cofar/EducationProgram.htm

 

 

Myth #3

 

 

Allergies to milk, egg and wheat are bothersome, but they are not severe and will not lead to anaphylaxis.
Reality: Any food can cause anaphylaxis, but those with peanut, tree nut and seafood allergies are at high risk of anaphylaxis.

 

“Understanding what factors push a mild reaction to anaphylaxis is very important,” said participant williamsmummy, pointing to factors such as “alcohol/stress, such as exam stress; time of the month for woman; poor asthma control; environmental allergies, such as hay fever; poor health, e.g., recovering from viral or bacterial infection.”

 

Participant Julie Trone agreed, “The immune system strength sure does play a huge role” in the severity of a reaction, adding that “the amount of allergen ingested” is also important – “thus the reason for each reaction to be unpredictable.”

 

“How many people have been told: Just let them eat a little – it won’t harm. OR: they can build up a tolerance – a little won’t hurt,” said co-host Carmen, Mom to the Screaming Masses. “Those are two HUGE and very harmful myths.”

 

Co-host Anne-Marie, The Write Spot, agreed, “NOT with allergies. They are doing ‘sensitivity training’ type tests, but in a hospital setting with nurses and doctors available and constantly monitoring. It’s not something to be done casually.”

 

 

Myth #4

 

In the U.S., all ingredients must be listed on a product label.
Reality: A major food allergen may not be omitted from the product label even if it is only a minor ingredient.  But allergens not considered major allergens may remain unidentified on product labels.

 

Additional Ambiguities: Cross contact can occur when safe foods come in contact with an allergen, causing the safe food to contain small amounts of unintentional allergenic ingredients.

 

“This is also more common that people imagine,” said co-host Niri, Mommy Niri.

 

“Be sure to read and re-read product labels every time you purchase an item! When in doubt, contact the manufacturers directly for product information,” said host Lori Sandler. “If you are not given a definitive answer regarding allergen safety, play it safe and avoid the food product!”

 

 

Myth #5

 

Using a product with a precautionary label that says “may contain peanuts” is riskier than using a product that says “manufactured in a facility that manufactures products containing peanuts.”

 

 

Reality: Precautionary labels are unregulated. Studies that have looked at risks associated with precautionary labels did not find a correlation between the type of advisory statement and a degree of risk.

 

 

“You cannot assess the degree of risk based on the type of precautionary label used,” said host Lori Sandler. The U.S. Food Allergy Guidelines suggest avoiding products with a precautionary label for your allergen.

 

It’s a “very common misconception that certain precautionary labels carry greater risk,” noted host Marion Groetch. “How many of you have thought in the past that a product that said ‘manufactured in a shared facility with…’ was safer than a product that said ‘may contain…’?”  In reality, you should avoid foods with any label indicating that it may contain any trace of your allergen.

 

 

Myth #6

 

 

Food manufacturers must label a product with an advisory statement if that product has come in contact with a major allergen.
Reality: Advisory labeling is voluntary and unregulated.  Host Marion Groetch has reported that overall 7% of all products with advisory statements (such as “shared facility” or “shared equipment” or “may contain” labels) that were tested contained detectable allergen residue.

 

If you are unsure whether a product might contain your allergen, you can always call the company directly.

 

However, “I get very frustrated when I call a company and the rep tells me they ‘follow good cleaning practices’ after sending an allergen through on shared equipment,” said participant Libby. “Would that person give their child a food that came off equipment that had processed rat poison, as long as it was cleaned well afterward?”

 

Host Marion Groetch suggested, “Sometimes it is best to get past the person reading from the script. If I am not comfortable that the person answering my questions is knowledgeable, I ask to speak to the quality control manager.”

 

 

Myth #7

 

 

Children with food allergies are not at increased nutritional risk.
Reality: Children with multiple food allergies or milk allergies are at increased risk of nutrient deficiencies; nutritional rickets; shorter stature; failure to thrive! (Isolauri J. Pediatri 1998, Christie et al JADA 2002, Jensen et al Pediatr. Allergy Immunol 2004)

 

So it’s important to make sure your child is getting the nutrients he or she needs, despite food allergies!  Speak to a doctor or an allergist about safe alternatives.

 

 

Additional myth – allergic reactions

 

“People often think that allergic reactions get worse every time, this again is a myth,” said participant williamsmummy. “Each reaction should be viewed individually, and symptoms differ wildly. Understanding when things are life threatening is crucial.”

 

“On the flip side, many people assume that their reactions won’t get worse,” noted participant Christy, More Than Mommy. “That can be a dangerous assumption, too.”

 

 

Additional reality – outgrowing food allergies

 

“One of the things I encounter is whether or not kids will grow out of food allergies,” said co-host Caryn, Rockin’ Mama. “I think it really depends on the allergy, the severity of the allergy, whether or not said food has been omitted, and the individual child.”

 

“My son grew out of lactose intolerance, which he had as an infant. He still has allergies to peanuts and walnuts,” said co-host Ellen, Love That Max.

 

“We retest every year. Levels change and my son outgrew coconut and almond” allergies, added Carmen, Mom to the Screaming Masses.

 

“Food allergies play such an important role in our lives as a family, and these talks have been so wonderful!” said participant Gabrielle. “It’s so great to talk to other moms who are going through the same thing and all the advice has been awesome!”

 

 

Resources

 

Find food allergy awareness bracelets: www.allerbling.com. (Gabrielle)

 

Helping moms make sense of food allergies: http://www.dotcomsformoms.com/making-sense-of-food-allergies (Sandra)

 

Learning the reality of food allergies the hard way: http://ti.me/a0fQZY (Libby)

 

 

Thanks to Marion Groetch and Lori Sandler for helping us dispel the common myths about food allergies, and thank you to these amazing co-hosts for their contributions!!

 

Caryn, Rockin’ Mama

Jodi, Mom’s Favorite Stuff

Niri, Mommy Niri

Anne-Marie, The Write Spot

Ellen, Love That Max

Carmen, Mom to the Screaming Masses

 

 

See the original Talk here: http://tmotherhood.wpengine.com/talk/show/id/62180