Common Myths About Food Allergies

On April 26, 2011, a number of women came to TheMotherhood to join Marion Groetch, MS, RD, CDN, senior dietitian at the Jaffe Food Allergy Institute at Mount Sinai School of Medicine, and a recognized nutrition authority in the field of food allergies, to learn about common myths and misunderstandings involving food allergies.

 

“We hope today’s Talk helps clarify the facts, not the myths associated with managing food allergies,” said Lori Sandler, founder of Divvies Bakery and author of The Divvies Bakery Cookbook, who hosted the class with Marion.

 

A lively and insightful discussion followed.  Read on to learn about common food allergy myths and realities, or click the “View Talk” button to read the entire conversation!

 

 

Myth #1

 

Food allergy and food intolerance are the same thing.
Reality: Food allergy and food intolerance are not the same.

 

According to host Marion Groetch, “Food allergy is defined as an adverse reaction caused by an immune response that occurs reproducibly on exposure to a given food.
“While food intolerance is an adverse reaction to a food, it is not mediated by the immune system. Lactose intolerance is a good example of a food intolerance. It is caused by a deficiency of the lactase enzyme, which makes digestion of the milk sugar, lactose, difficult. The immune system is not involved.”

 

“I think this myth makes it MUCH more difficult for people with food allergies,” said participant Christy, More Than Mommy. “Many people believe that it’s a trivial issue because people claim they have allergies when they don’t.”

 

Agreed co-host Anne-Marie, The Write Spot, “Totally understand the difference now that I’ve developed sensitivities while my daughter has to deal with nut allergies. But most people don’t get it. It’s up to us, I guess, to educate about the difference and how the body reacts to allergies (can be life threatening) than sensitivities (painful, but probably won’t kill you).”

 

 

Myth #2

 

 

It’s easy to manage a food allergy … just avoid the food!
Reality: Allergen avoidance is not always straightforward. There are many nuances even to something as simple as label reading.

 

Avoidance means diligence in the grocery store, in the home kitchen, in restaurants, while visiting friends or going to school or camp … avoidance is part of every day life for families with food allergy.

 

“My son gets upset” about avoiding foods containing his allergen, said co-host Carmen, Mom to the Screaming Masses, “but he does understand that he has an allergy. I try to make a safe alternative – I made peanut butter cups for Easter and made soy butter ones as well – he was really happy.”

 

On the other hand, “my daughter doesn’t want to be itchy again and is happy to do anything to avoid that,” pointed out co-host Jodi, Mom’s Favorite Stuff.

 

As for those who believe food allergies can be cured, “there is NO cure for food allergy!” said host Lori Sandler. “Avoidance of the identified allergen is the only way to prevent food allergic reactions.”

 

“I think people hear about ‘treatments’ in the news and confuse that word with ‘cure,’” added participant Susan, Peanuts in Eden.
Host Marion Groetch noted, “Through the Consortium of Food Allergy Research, we have developed an extensive food allergy education program that is free and downloadable. There are handouts on all of these topics and a short video that reviews the highlights of the program.”
Here is the website: https://web.emmes.com/study/cofar/EducationProgram.htm

 

 

Myth #3

 

 

Allergies to milk, egg and wheat are bothersome, but they are not severe and will not lead to anaphylaxis.
Reality: Any food can cause anaphylaxis, but those with peanut, tree nut and seafood allergies are at high risk of anaphylaxis.

 

“Understanding what factors push a mild reaction to anaphylaxis is very important,” said participant williamsmummy, pointing to factors such as “alcohol/stress, such as exam stress; time of the month for woman; poor asthma control; environmental allergies, such as hay fever; poor health, e.g., recovering from viral or bacterial infection.”

 

Participant Julie Trone agreed, “The immune system strength sure does play a huge role” in the severity of a reaction, adding that “the amount of allergen ingested” is also important – “thus the reason for each reaction to be unpredictable.”

 

“How many people have been told: Just let them eat a little – it won’t harm. OR: they can build up a tolerance – a little won’t hurt,” said co-host Carmen, Mom to the Screaming Masses. “Those are two HUGE and very harmful myths.”

 

Co-host Anne-Marie, The Write Spot, agreed, “NOT with allergies. They are doing ‘sensitivity training’ type tests, but in a hospital setting with nurses and doctors available and constantly monitoring. It’s not something to be done casually.”

 

 

Myth #4

 

In the U.S., all ingredients must be listed on a product label.
Reality: A major food allergen may not be omitted from the product label even if it is only a minor ingredient.  But allergens not considered major allergens may remain unidentified on product labels.

 

Additional Ambiguities: Cross contact can occur when safe foods come in contact with an allergen, causing the safe food to contain small amounts of unintentional allergenic ingredients.

 

“This is also more common that people imagine,” said co-host Niri, Mommy Niri.

 

“Be sure to read and re-read product labels every time you purchase an item! When in doubt, contact the manufacturers directly for product information,” said host Lori Sandler. “If you are not given a definitive answer regarding allergen safety, play it safe and avoid the food product!”

 

 

Myth #5

 

Using a product with a precautionary label that says “may contain peanuts” is riskier than using a product that says “manufactured in a facility that manufactures products containing peanuts.”

 

 

Reality: Precautionary labels are unregulated. Studies that have looked at risks associated with precautionary labels did not find a correlation between the type of advisory statement and a degree of risk.

 

 

“You cannot assess the degree of risk based on the type of precautionary label used,” said host Lori Sandler. The U.S. Food Allergy Guidelines suggest avoiding products with a precautionary label for your allergen.

 

It’s a “very common misconception that certain precautionary labels carry greater risk,” noted host Marion Groetch. “How many of you have thought in the past that a product that said ‘manufactured in a shared facility with…’ was safer than a product that said ‘may contain…’?”  In reality, you should avoid foods with any label indicating that it may contain any trace of your allergen.

 

 

Myth #6

 

 

Food manufacturers must label a product with an advisory statement if that product has come in contact with a major allergen.
Reality: Advisory labeling is voluntary and unregulated.  Host Marion Groetch has reported that overall 7% of all products with advisory statements (such as “shared facility” or “shared equipment” or “may contain” labels) that were tested contained detectable allergen residue.

 

If you are unsure whether a product might contain your allergen, you can always call the company directly.

 

However, “I get very frustrated when I call a company and the rep tells me they ‘follow good cleaning practices’ after sending an allergen through on shared equipment,” said participant Libby. “Would that person give their child a food that came off equipment that had processed rat poison, as long as it was cleaned well afterward?”

 

Host Marion Groetch suggested, “Sometimes it is best to get past the person reading from the script. If I am not comfortable that the person answering my questions is knowledgeable, I ask to speak to the quality control manager.”

 

 

Myth #7

 

 

Children with food allergies are not at increased nutritional risk.
Reality: Children with multiple food allergies or milk allergies are at increased risk of nutrient deficiencies; nutritional rickets; shorter stature; failure to thrive! (Isolauri J. Pediatri 1998, Christie et al JADA 2002, Jensen et al Pediatr. Allergy Immunol 2004)

 

So it’s important to make sure your child is getting the nutrients he or she needs, despite food allergies!  Speak to a doctor or an allergist about safe alternatives.

 

 

Additional myth – allergic reactions

 

“People often think that allergic reactions get worse every time, this again is a myth,” said participant williamsmummy. “Each reaction should be viewed individually, and symptoms differ wildly. Understanding when things are life threatening is crucial.”

 

“On the flip side, many people assume that their reactions won’t get worse,” noted participant Christy, More Than Mommy. “That can be a dangerous assumption, too.”

 

 

Additional reality – outgrowing food allergies

 

“One of the things I encounter is whether or not kids will grow out of food allergies,” said co-host Caryn, Rockin’ Mama. “I think it really depends on the allergy, the severity of the allergy, whether or not said food has been omitted, and the individual child.”

 

“My son grew out of lactose intolerance, which he had as an infant. He still has allergies to peanuts and walnuts,” said co-host Ellen, Love That Max.

 

“We retest every year. Levels change and my son outgrew coconut and almond” allergies, added Carmen, Mom to the Screaming Masses.

 

“Food allergies play such an important role in our lives as a family, and these talks have been so wonderful!” said participant Gabrielle. “It’s so great to talk to other moms who are going through the same thing and all the advice has been awesome!”

 

 

Resources

 

Find food allergy awareness bracelets: www.allerbling.com. (Gabrielle)

 

Helping moms make sense of food allergies: http://www.dotcomsformoms.com/making-sense-of-food-allergies (Sandra)

 

Learning the reality of food allergies the hard way: http://ti.me/a0fQZY (Libby)

 

 

Thanks to Marion Groetch and Lori Sandler for helping us dispel the common myths about food allergies, and thank you to these amazing co-hosts for their contributions!!

 

Caryn, Rockin’ Mama

Jodi, Mom’s Favorite Stuff

Niri, Mommy Niri

Anne-Marie, The Write Spot

Ellen, Love That Max

Carmen, Mom to the Screaming Masses

 

 

See the original Talk here: http://tmotherhood.wpengine.com/talk/show/id/62180

On April 12, 2011, parents came to TheMotherhood to exchange ideas, suggestions and experiences with sending kids with food allergies to camp, sleepovers or playdates.

 

http://youtu.be/bNh1y4qRJwM

 

The class was sponsored by ConAgra Foods and led by Lori Sandler, founder of Divvies Bakery and author of The Divvies Bakery Cookbook.  Joining her as hosts were Renee Flax (American Camp Association), Sandy Rubenstein (Camp Wingate*Kirkland), Abby Shapiro (Camp Source Network) and Jenny Kales (Nut-Free Mom), who all have experience handling food allergies in situations when children are away from home.

 

“I think we can all agree that knowledge is power!” said host Renee Flax, American Camp Association. “Especially when we are talking about such a sensitive topic as the health and well being of our children.”

 

 

Educating Caregivers

 

“It is so important to know who will be taking care of the children,” said host Lori Sandler. “Make sure whoever is in charge knows about your child’s food allergies and emergency procedures. The goal is for their physical, emotional, and social needs to be taken care of 100%, so they can focus on having fun!”

 

“Creating a culture of communication within your extended ‘communities’ is essential,” added co-host Ariella Rogge, Sanborn Ranch Camps. “Don’t be afraid to share, share, share!”

 

“Be sure you and your child trust your child’s friend’s parents to take excellent care of your child,” Lori cautioned. “Do they take food allergies seriously? Will they take good care of your child – physically and emotionally?”

 

“As the mother of a child with severe allergies to peanuts and tree nuts, it is my job to help make play dates as easy as possible for the other parents,” noted host Jenny Kales, Nut-Free Mom. “I find it helps to get to know them before an official ‘playdate’ at their home.”

 

Part of educating others is finding a way to “convey allergy needs without ‘scaring’ the other parents,” Jenny added. “For example, when discussing my daughter’s allergy needs at a sleepover, I go for an informative but calm approach. This seems to help! Many are afraid of food allergies, but once you explain simple ways to avoid reactions, it seems to help ease anxiety.”

 

“I tell all caregivers (playdate moms, teachers, babysitters) to feel free to call me with any and all questions,” said co-host Jill Mindlin, parent advocate. “I always tell them there are no stupid questions. I find it helps reduce their stress level and mine!”

 

 

Considering Camps

 

“Going to camp is a life experience like no other where kids can learn independence, confidence and sense of self,” said host Sandy Rubenstein, Camp Wingate*Kirkland. “Having a food allergy should not be an obstacle to this rewarding experience.”

 

Added host Abby Shapiro, Camp Source Network, “As someone who speaks with so many parents each year about overnight camps for their children, it is amazing how many parents have concerns about this issue. We are finding that the number of kids with food allergies is increasing every year!”

 

Consider these questions and tips from host Lori Sandler when deciding where to send your child with food allergies for sleepaway camp.

 

– COMMUNICATION is key! Know the camp’s policy regarding food and food allergies.

 

– The camp owners/directors must view the relationship with camper and family as a partnership!

 

– You must understand and feel comfortable with the camp’s philosophy and procedures.

 

– Ask yourself: If your child did not have food allergies, would he/she still choose this camp/activity?

 

– How close is the camp to an ambulance or hospital?

 

– Are all medications up to date? Will they be kept in a cool place (especially EpiPens)?

 

– What are emergency procedures for trip destinations? Know where the trip destinations will be.

 

– Art projects and activities should be safe and free of allergens!  (As participant Jessica Cohen pointed out, “Most parents don’t realize that PlayDough is made with wheat.  We use Crayola Model Magic instead. It’s one time use so it’s kind of pricey but a good alternative.”)

 

– Find out if the camp allows candy and care packages containing food. If so, are they required to be allergen-free? Are the packages opened and screened before final delivery?

 

– Ask if the camp’s model is such that everyone eats the same foods; or do campers with food allergies eat separate foods?

 

– As you prepare to speak with camp directors about your child’s food allergies, consider bringing along some recipe ideas for meal plans to meet your child’s allergy needs. (Although not focused specifically on allergen-free recipes, websites such as ReadySetEat.com offer a wide variety of quick and easy recipe ideas using safe ingredients, made up of ingredients the camp kitchen will likely always have on-hand if any day’s menu is off limits for your camper.)

 

Co-host Jill Mindlin had this advice to add:

 

“When choosing a camp, do your research. Ask your network of families of children with food allergies where they have had successful experiences. Consider working with a camp consultant. Once you have narrowed down your list, go visit some camps. Meet with the director as well as the chef and ‘food allergy coordinator’ (if the camp has one). Tour the kitchen and inquire about food allergy protocol, food prep, storage and cleaning procedures. As in choosing any caregiver, make sure you are comfortable with the people you meet and that you believe they will take food allergies seriously and take good care of your child. Ask how they currently handle campers with food allergies and find out if you can speak with some of the families. Ask if they could send a letter home to campers in your child’s bunk explaining about food allergies and the policies in place.”

 

 

Allergy Friendly Camps

 

There are specific, allergy-friendly camp options available for your child.

 

“It is important to get a clear understanding of what the camp’s policies are,” said host Abby Shapiro, Camp Source Network. “Some camps are nut-free, which means that they do not allow any nuts or nut oils to be used at the camp whatsoever. The campers are also told about the camp policy so they know that they are not allowed to purchase or have any nut products at the camp.”

 

One such camp is Camp Wingate*Kirkland.  “When we decided to become a nut-free environment at Camp W*K, it was to create a safe place where children didn’t have to be defined by their allergies,” said host Sandy Rubenstein. “We wanted to take all of the pressure away from them so that they could focus on the fun.”

 

For kids with non-nut allergies, “One thing you can do with your camp directors is request a copy of the summer menu – then you can see when the trouble spots might be – and be able to craft something specific for your child,” suggested co-host Ariella Rogge, Sanborn Ranch Camps.

 

Going a step further, “there are many camps that hire a parent as a staff member and then the child comes to camp as well,” said host Renee Flax, American Camp Association. “You can go to www.acampjob4u.org and research camps that would suit your needs.”

 

Co-host Eleanor Garrow, founder of Camp TAG (The Allergy Gang), also chimed in. “I’m very excited to bring this program to all families affected by food allergies and anaphylaxis – and for siblings, as well. I have one with FA’s and one without, and I want them to enjoy this experience together. Siblings are just as affected and are great advocates for their siblings with FA’s – it is important for them to also meet other siblings like them. AND, it’s important for our children with FA’s to meet other children who share the same conditions so they know they ARE NOT alone!”

 

 

Safe Sleepovers

 

As with sending your child to camp, communication is key when it comes to sleepovers and afternoon playdates.

 

Co-host Jen Rabulan-Bertram, Next Kid Thing, suggested providing “recommendations for ‘safe’ food brands. This would be a good thing to know for host families of playdates” or sleepovers.

 

“Emailing a list of acceptable items works well,” added co-host Jo-Lynne Shane, Musings of a Housewife. “People like to know what they CAN have, not what they can’t.”

 

Host Lori Sandler provided several examples: “Hunt’s brand 100% Natural Ketchup contains only 5 simple ingredients: tomatoes, sugar, vinegar, salt and other seasonings, with no high fructose corn syrup, artificial ingredients or preservatives. Also consider Orville Redenbacher’s Kettle Korn, which is free of dairy! Of course, read and re-read labels every time!”

 

“Teach your kids to politely refuse foods when at other people’s homes if they are not sure about it,” added host Jenny Kales, Nut-Free Mom. “This is a great life skill as well as a needed food allergy skill.”

 

Jenny also added, “For sleepovers, I provide the breakfast food. There is just too much risk of cross-contact otherwise. Believe me, the hosting parents won’t mind a ‘breakfast delivery.’ Even sending a safe cereal is a good plan.”

 

Other tips:

 

– Whether on a play date or a sleepover, send along some of your child’s favorite snacks. These snacks may become his friends’ favorites, too!

 

– Always be reachable by phone…make sure your phone is charged, and turned on, and with you.

 

– Have your child practice how to approach an adult for help. Discuss not only what to say, but how to say it!

 

 

Planning Playdates

 

For playdates that last just a few hours, food and snacks might not be as necessary as they are with longer periods away from home at camp or sleepovers.

 

“Since so many events are focused on food, which highlights the differences, it would be good to have playdates that focus on other activities,” noted co-host Nirasha Jaganath, Mommy Niri.

 

For those playdates that might include food, “I have thought about the possibility of feeding my son before any potential playdate and then packing some snacks with him,” said co-host Caryn Bailey, Rockin’ Mama.

 

“That’s what we always do before going anywhere, even shopping,” agreed participant Hope M. Hill. “I try to plan our day around when we can eat because she has multiple FA’s. Then I can provide snacks when needed.”

 

“If your kids are very young, I find it helps to stay at the play date. In fact, many parents will prefer this,” noted host Jenny Kales, Nut-Free Mom. “Once the other family is knowledgeable and comfortable about food allergies, you can consider leaving your young child for short periods.”

 

“My daughter’s friends’ parents are all pretty understanding about her allergy now,” agreed Jodi Grundig, Mom’s Favorite Stuff. “But I always ask what snacks will be provided at playdates.”

 

“What I do, before birthday parties or playdates, is speak with the host and ask them what they will be offering so I can provide a similar snack or make a cupcake/cake for my daughter so she can eat safely,” said participant Adriana.

 

You can also “make laminated cards outlining the things your child cannot have to hand to parents for playdates and such,” suggested co-host Jo-Lynne Shane, Musings of a Housewife.  She provided a link to the following template for such a card: http://www.foodallergy.org/files/chefcardtemplate.pdf

 

Participant Tina also suggested getting a bracelet for your child to wear. “It is so easy for others to forget about food allergies because they can’t see it,” she said, but in her daughter’s case, “the bracelet does seem to help so far.”

 

Find bracelets at: American Medical ID, Medic Alert, StatKids.com

 

 

Growing Comfortable – Not Complacent

 

“If you are a stay at home mom, you can take that time to become involved with playgroups, schools or camps along with your child so that when you are ready to let go, you have seen how they handle situations, and sometimes even laid the groundwork for you eventually to feel safe to let them enjoy time away,” said co-host Aly AllerDine.

 

For managing food allergies away from home, Aly also suggested, “Carry the doctor’s instructions along with the Epi-Pen and Benadryl so there are no mistakes. I think there should be one with the child and one with the nurse (if you are so lucky to have one at your school) or in the office. There needs to be one nearby at all times, NOT locked up, and all staff should be trained to use it when they learn First Aid.”

 

Participant Sandi Kornblum agreed, “I keep a medicine measuring cup in with the Benadryl in my son’s bag to make it easy for everyone. I also write the dosage right on the Benadryl bottle with a sharpie marker. I make it was easy as possible in the event someone may have to attend to him in an emergency.”

 

But with both your child and others, “Emphasize that your child is not fragile or unlike other kids in most ways – they just can’t eat certain things,” said host Jenny Kales, Nut-Free Mom. “Your child’s confidence is so important to the success of social interactions.”

 

 

Recipes

 

Black Bean Pasta Bowl (can also be made with other kinds of beans and gluten-free pasta): http://www.readyseteat.com/recipes-Black-Bean-Pasta-Bowl-5258.html

 

 

Chicken and Black Bean Chili (can also be made with different kinds of beans or no beans at all): http://www.readyseteat.com/recipes-Chicken-and-Black-Bean-Chili-5189.html

 

 

Smoky Beef and Rice Skillet: http://www.readyseteat.com/recipes-Smoky-Beef-and-Rice-Skillet-5247.html

 

 

Recipe database: http://www.KidsWithFoodAllergies.org

 

Divvies Chocolate Chip Pancakes

 

Perfect for after a sleepover!  You can even make these ahead because they freeze well. Just let them sit out overnight before serving.

 

Remember:  Playing with your food is allowed!  Feel free to adjust ingredients so they meet your needs for taste and safety, and be sure to check labels before using any ingredients!

 

Ingredients:

2 cups unbleached flour

2 1/2 teaspoons baking powder

1/2 teaspoon cinnamon

1/2 teaspoon nutmeg

1/2 teaspoon salt

1 1/2 cup rice milk (soy milk or any other milk will work fine)

6 tablespoons light brown sugar

2 tablespoons granulated white sugar

4 tablespoons Fleischmann’s unsalted margarine (no dairy!), melted

2 teaspoons white vinegar

2 teaspoons vanilla extract

1 teaspoons grated lemon zest

1 cup Divvies™ Semisweet Chocolate Chips*

1 tablespoon unsalted margarine (no dairy) for cooking the pancakes

Confectioners sugar

 

Preparation:

– Pre-heat a griddle over medium-high heat while preparing pancake batter.

– In a large mixing bowl, whisk together the flour, baking powder, cinnamon, nutmeg, and salt.

– In a separate bowl, stir the rice milk, brown sugar, granulated white sugar, melted Fleischmann’s Margarine, vinegar, vanilla, and lemon zest until smooth.

– Stir the liquid into the dry ingredients until almost smooth; there may be some lumps.

– Lightly “butter” the griddle.  You may need to reduce the heat slightly.

– Gently drop the batter by heaping tablespoons, and cook until the bottoms are slightly golden in color and bubbles are forming on the surface.

– Add a few chocolate chips to each pancake; flip, and cook for about 1 minute more on the other side.

– Repeat, using up all the batter and chocolate chips.  Sprinkle the pancakes with confectioners sugar and serve with maple syrup.

More pancakes than you need? Cut the recipe in half or just freeze what you don’t need.

 

*Find Divvies chocolate chips online at http://www.divvies.com/store/commerce.cgi?search=action&category=CDNY

 

 

Resources

 

For questions about camps that are nut-free, call Abby Shapiro at Camp Source Network: 888-985-2267

 

For questions about sending kids to camp, email Sandy Rubenstein, Camp Wingate*Kirkland (a nut-free, allergy-friendly camp): [email protected], or visit them online, www.campwk.com

 

For additional questions, contact Ariella Rogge, Sanborn Ranch Camps: 719-748-3341 or [email protected]

 

Find camps promoting themselves as nut-aware: www.campparents.org

 

Find camps accredited by the American Camp Association (which have nurses on staff and Epi-Pens on hand): www.campwizard.org

 

Find an allergy support group: http://www.foodallergy.org/section/support-groups

 

 

A big thanks to our hosts and co-hosts for leading this enlightening class!

 

Lori Sandler, Divvies

Sandy Rubenstein, Camp Wingate*Kirkland

Renee Flax, American Camp Association

Caryn Bailey, Rockin’ Mama

Eleanor Garrow, FoodAllergy.org

Jodi Grundig, Mom’s Favorite Stuff

Nirasha Jaganath, Mommy Niri

Jenny Kales, Nut-Free Mom

Jill Mindlin, parent advocate

Jen Rabulan-Bertram, Next Kid Thing

Ariella Rogge, Sanborn Ranch Camps

Jo-Lynne Shane, Musings of a Housewife

Abby Shapiro, Camp Source Network

Aly AllerDine

 

 

See the original Talk here: http://tmotherhood.wpengine.com/talk/show/id/62179

On April 5, 2011, parents came to TheMotherhood to talk about their anxieties and fears in dealing with their children’s food allergies, and – most importantly – to give each other support and recognize they weren’t alone.

 

On hand to lead the Talk were Lori Sandler, founder of Divvies Bakery and author of The Divvies Bakery Cookbook, and clinical psychologist Dr. Jules Spotts, Ph.D.

 

As participant Gina Rau said, “It’s never easy, but there are so many ways to make it easier.”  By sharing ideas and offering support, our conversation in TheMotherhood brought that sentiment to life!

 

 

Anxiety over Food Allergies

 

“Sometimes I think we as parents have just as much or even more anxiety than our kids do,” said participant Marla.

 

Several others agreed, although participant JulieTrone pointed out, “As my son has gotten older and more aware of the world around him he has shown more angst about having food allergies.”

 

“It’s a hard balance between emphasizing the importance of being safe, while keeping anxiety levels down,” sympathized co-host Christy Matte, Quirky Fusion.

 

Participant Gina Rau made the point that awareness, education and understanding is key. “My 7yr old used to get nervous about class parties or special events,” she commented. “Now that all the kids in his class know about his food restrictions, he’s more confident.”

 

 

Dealing with Stress and Anxiety

 

Preparation and knowledge will help you deal with stress.

 

Noted Marla, “I try to plan out as much as I can and communicate very clearly when we are with new crowds – preschool, friends’ houses, etc.  A lot of folks are aware of food allergies, but many don’t realize that they really can be life threatening.”

 

“I try and always have safe snacks and food around him to try and avoid a reaction to begin with,” added co-host Voula Katsoris, Loukoumi.

 

But it can still be hard.  “I feel like I’m constantly trying to educate people and asking people to wash their kids’ hands, or handing out wipes, etc,” said Jasperhart. “It can feel so overwhelming sometimes, because other kids’ parents can just let their kids go or drop them off at a birthday party with no worries.”

 

To avoid feeling overwhelmed in everyday situations, learn all you can about your child’s allergies.  Co-host Sloane Miller, Allergic Girl, said, “Realistic medical information about the risks to you and your family will help you manage those risks, decrease irrational fears and navigate the world safely.”

 

And sometimes sweating it out can help. “As someone who spends a lot of time working out with parents, exercising helps them mentally and physically to deal with anxiety!” noted co-host Herman Walker, Give It Up Fitness.

 

“When my anxiety was truly hard to manage, I consulted with a therapist familiar with FA and families. I also started attending a support group,” said co-host Susan Weissman, Peanuts in Eden.

 

 

Finding a Therapist

 

“Dr. Spotts is available to do phone consultations. He is a fantastic resource and way to start,” said host Lori Sandler. “From there, I recommend you contact local support groups/friends with kids who have food allergies to see if they can recommend a great psychologist!”

 

Co-host Sloane Miller, Allergic Girl, said she is “also available for over the phone consultations.”

 

When you are looking for a therapist, you want to “ask about the emotional and anxiety components of having a food allergy. Indicate that you have this medically under control, and are looking for guidance and help in managing the larger familial and individual consequences for your child,” recommended host Dr. Jules Spotts. “Also, check with your medical people as to who they might refer as humanistically oriented therapists, not behavioral managers.”

 

In addition, http://www.aaaai.org and http://www.acaai.org and http://www.aafa.org have lists of board certified allergists nationally.

 

 

Allergies in School

 

It’s one thing when your child is at home, in an environment you can control.  Sending him or her to school, though, can take a leap of faith.

 

“My daughter is shy about her allergy and doesn’t like to talk about it, so I had to make sure that I talked privately with her teachers to let them know about the allergy,” said co-host Clarissa Nassar, The Posh Parent. “I’d talk to the teacher and make sure she is aware of your concerns.”

 

http://youtu.be/yK1Jna8YjOU

 

“My son needed a ‘plan’ that he could follow to communicate since he is shy too,” added co-host Susan Weissman.  “When he was less verbal he was even able to signal a teacher if had a question about allergies without attracting attention.”

 

Noted co-host Voula Katsoris, Loukoumi, “Our rule is that he is only to eat snacks that have been provided from home (same with lunch, of course). Also, I used to send in a box with acceptable snacks in it that had his name on it so if for some reason, there was an extra snack being given one day, the teacher would know what to do and my son would be able to have a treat as well.”

 

“The important thing to remember is to teach him that it is his allergy,” said co-host Carmen Staicer, Mom to the Screaming Masses. “It’s not the school’s allergy, and he will need to learn to navigate it.”

 

“I think it gets easier once you feel confident in the policies and procedures you have put into place with the school,” said participant Sandi Kornblum. “Work together with them to accomplish your goals.”

 

 

Allergies at Restaurants and Parties

 

“My daughter (6, with several food allergies) doesn’t eat any food that doesn’t come from home,” said participant lisaz. “She (or we) carries a lunchbox around with her to restaurants and parties and outings. When we leave home or she is watched by someone else, we prepare food for her to eat while we’re gone.”

 

Host Lori Sandler noted, “The only way to not have a reaction is by total avoidance of an allergen. If you are not sure what ingredients are in food, or how it is manufactured, it is not worth taking a chance.”

 

Inviting others to your house for a party is one way to control the food. “I try to have two get-togethers a year,” said co-host Kristin Beltaos, A Gift of Miles. “It only helps others understand AND my son has a marvelous time not having to ‘think’ about it for the moment.”

 

 

Building Your Child’s Confidence

 

Most participants acknowledged the importance of teaching their kids how to handle their allergy independently.

 

Host Lori Sandler emphasized a strategy of “listen and hear – acknowledge and respond when your child is self-advocating directly to you” to encourage that self-sufficiency in managing the allergy.  “Teach your child how to advocate for herself. It starts in the home! This is a collaborative effort, which works best when embraced by the entire family. Parents need to be a unified front.”

 

“Don’t use the phrase ‘are you sure,’ which will almost certainly involve his feeling doubted,” added host Dr. Spotts. “Try, ‘tell me more about the feeling,’ or, ‘describe what you are feeling in more detail.’”

 

Dr. Spotts also recommended practicing “how to approach an adult for help. Discuss not only what to say, but how to say it! Critical that you give positive reinforcement, and be very sensitive when giving constructive criticism. Talk about how to deal with peers (supportive and unsupportive).”

 

Co-host Nick Katsoris agreed, “It is very important to discuss with your kids, let them express their feelings and then deal with their feelings so they know how to handle the situation in the best way possible. Open communication and letting them know that you are there to help them manage their allergies and assist with food alternatives is of utmost importance.”

 

“As early as possible, make sure your child understands his food allergies – unsafe ingredients, foods, reading labels, where medications are kept, never leave home without EpiPen, etc.,” said host Lori Sandler. “This will give him valuable information to utilize to help himself as well as others feel more in control.”

 

 

Getting Others to Understand

 

A number of participants said they had difficulty convincing others of the severity of their children’s allergies.  Even family members tended to downplay the seriousness of exposure to an allergen.

 

“You have become an educator,” said co-host Kristin Beltaos, A Gift of Miles. “We have dealt with my son’s allergies for 4 years, and there are some people that sometimes just don’t get it. There will be people though, family or friends, that really do get it and you will gravitate toward them.”

 

“Repetition is necessary, in a way of conveying information, not anxiety,” commented host Dr. Jules Spotts. “Make clear to everyone that you are not making judgments about them, just continuing to reinforce the appropriate information.”

 

“And everyone learns differently,” said co-host Susan Weissman, Peanuts in Eden. “When educating people I try to think about what their best skill set is: My father is a good listener but I gave my mother-in-law a FAAN video to watch since she is more visual.”

 

“A lot of this is about demystification: the removal of mystery or confusion surrounding the topic of food allergies as it relates to your particular situation,” said host Lori Sandler. “Know which foods your child is allergic to; how to treat all types of reactions from hives to anaphylaxis. Explain food allergies (age appropriately) to all family members. Make sure everyone knows the action plan in the event of a severe allergic reaction.”

 

And when it comes to strangers in a public place who might unknowingly be exposing your child to his or her allergen, “You can’t expect other people to protect your child, but you can always ask,” said Christy Matte, Quirky Fusion.

 

 

Supporting Children without Allergies

 

If you have one child with allergies and others who don’t have allergies, remember to make them part of the discussion.

 

“Support family members (typically siblings) who do not have food allergies,” said host Dr. Spotts. “Give them an opportunity to express their feelings, opinions and concerns.”

 

Added host Lori Sandler, “When our oldest son, Adam, was 14 years old, he expressed how daunting the idea of possibly having to give Benjamin an EpiPen had become. At times Adam and Max felt resentful that they couldn’t have peanut butter and jelly sandwiches in our home … this was a very important discussion as it gave them a chance to be heard; gave us an opportunity to realize that we needed to make alone time with them to take a break from always dealing with food allergies as a family.”

 

http://youtu.be/BqLxBePEbFM

 

Dr. Spotts counseled, “Engage your kids – offer support by guiding them and modeling behavior.”

 

 

The “New Normal”

 

“Learning how to integrate food allergies into your child’s life (as well as your family’s and yours) takes patience and practice,” said host Lori Sandler.

 

But allergies don’t need to define a person.  As host Dr. Spotts said, “Having a food allergy is one piece of the puzzle of self, and the puzzle of family. Your child is a regular person, with a food allergy.”

 

“I try so hard to make her feel ‘normal’ that I find myself going crazy,” said Hope M. Hill. “I pack a refrigerator every time we go out shopping, etc. Just in case.”

 

Co-host Anne-Marie Nichols, This Mama Cooks, replied, “It does become the ‘new normal.’ You should see all the stuff I pack for myself when I travel. My suitcase is filled with rice crackers and rice milk cartons.”

 

“‘New Normal’ is in fact a chapter in my upcoming book about living with FA,” said co-host Susan Weissmann, Peanuts in Eden. “And you know what? I LOVE our new normal because it’s ours and makes a unique and close family.”

 

 

Being Brave

 

Hosts Dr. Spotts and Lori Sandler had words of encouragement for parents of children with food allergies.

 

Said Dr. Spotts, “The goal is not to get rid of the anxiety (have it go away); the goal is to diminish the anxiety and then you can do the action (try the food, go to a sleepover, confront a mother who is serving an un-safe food and ask if there is a safe alternative, etc.) If you are so anxious, then it will be very difficult to feel brave and to act bravely. It’s possible to feel anxious and brave at the same time is a life principle, not just regarding foods.”

 

And Lori added, “Do your best to be optimistic! Family members are affected differently; and dynamics are ever changing based on age, timing of diagnosis, life circumstances. You WILL figure out what is best for your family; and yes, this may change … just work to keep one another on track! Today there are so many incredible resources from this wonderfully warm, supportive community (here we are at TheMotherhood, among many others!) available to help you Navigate Food Allergies. Make seeking support for yourself a priority if you need it!”

 

 

Q&A

 

What is a good age to teach children how and when to use an EpiPen? (from Vish)

 

I’ve let my daughter use expired pens on oranges for practice and to make her feel more comfortable about the real pen, but I still want an adult to be responsible for the injection, if necessary. (Tracy Mayer)

 

Every child is different. We gave Benjamin the Epi-Pen Trainer when he was 4 (I think) just so he would be familiar with it. He has known how to use it from a very young age, but didn’t give him the responsibility until he requested it around 10. This is very child and family specific. (Lori Sandler)

 

Talk with your allergist or pediatrician about this one. They’ll know what age it’s good to start practicing how to use it and being responsible enough to have it with him. (Anne-Marie Nichols)

 

Do you try to recreate things allergen friendly or just avoid things altogether? (from mommaoffour)

 

I try various substitutes to try and have what we would normally eat. Sometimes it turns out GREAT and sometimes hmmm not so great! (Kristin Beltaos)

 

I ask my child what he wants or is curious about. For example he wanted to know what Mac and Cheese tasted like but is allergic to milk and soy so I re-created it using crushed Tings (a corn snack) rice milk and olive oil. (Susan Weissman)

 

What age do you teach them that their allergies can cause them to be sick and how do you relay this message? (from Heather)

 

When Benjamin was first learning to talk, we introduced the word “ingredients” and the concept that eating foods he was allergic to would make him “very, very sick” (Lori Sandler)

 

My son loves to put the food boxes on the table and “practice.” He also loves to “check” us when shopping by re-reading. No matter how rushed I feel I always let him do that since it’s so empowering. (Susan Weissman)

 

Getting them involved in the kitchen when they are old enough is important too! I rarely ate out growing up just because we couldn’t afford it and it is much healthier. So, it’s important to teach them how to cook for themselves and pack a safe food bag when they are away from home too. (jgs)

 

My daughter, age 14, was diagnosed with severe nut allergy as a baby. Once she began to read we trained her to read all labels and to be her own advocate. She is careful with foods that are not packaged and will always err on the side of caution and not eat something. She will say it just isn’t worth it. (JGP)

 

Is there any need to be wary of putting my egg and nut allergic 1-year-old into a public shopping cart? I always wipe down the handles and sides with a wet wipe…is that enough? (from AbbeyM)

 

Try something like this … http://www.floppyseat.com/ (MrsGailP)

 

I carry my son who is also 1 in a backpack at the store, because it’s easier to shop. Or there are shopping cart covers you can buy. (Natalie)

 

I found that traveling on airplanes is hard; Delta, for instance, serves peanuts on all their flights. I also get nervous when I see all the nuts they sell at the airport for people to bring on the plane. How do you all deal with this? (from Barbra Fordyce)

 

I call the airline ahead of time so the flight attendants are aware of his allergy. I’ve heard that some airlines will create a buffer zone for the allergic party. I also wipe down all the surfaces my child might touch with a sani-wipe. (Andrea)

 

And sometimes that means our paying more to travel a different airline or to travel a couple of hours by car to catch a flight that doesn’t serve our city but is peanut-free. (Benita)

 

How do you manage food allergies while traveling? Do you carry everything with you? Do you only book a hotel with a kitchenette? (from Vish)

 

We call ahead and ask lots of questions!! Depending on the situation, we have traveled and packed everything. When Benjamin was younger, we always made sure there was a kitchenette! Before we even travel we make sure the restaurants and hotels can serve safe and delicious meals.  I also make sure there is a hospital close by.  (Lori Sandler)

 

I always find a Whole Foods or Kroger close to where we are going. I also request a fridge in our room and clean it as soon as we get there. (Liz Reynolds)

 

Do you have foods in your home that your allergic child cannot have? Or does EVERYONE avoid? (from cararolinson)

 

When my son was younger, we put smiley face stickers on foods that were safe for him. With 8 people in the house, there is always something that’s not safe for him, and I wanted him to be able to be comfortable that he was safe no matter where he went. (Carmen Staicer)

 

We avoid what our food allergic daughter cannot have for one reason; if there is any place she should feel safe and free to be herself, it should be in her own home. (Thanita)

 

It depends on your family’s dietary needs, how many food allergies your child has, and how contact-sensitive he/she is. (Amy)

 

Can I take my nut-allergic child to a baseball game? (from Susan)

 

At some of the major league ball parks there are nut free sections. Call your stadium’s box office to ask about it. (Anne-Marie Nichols)

 

There are peanut-free games now at a lot of stadiums. My parents take my son to one every year. The stadiums power-wash everything and don’t sell any food with peanuts in them. (Christy Matte)

 

Check with FAAN; they sponsor nut-free sections at stadiums throughout the season. My daughter went to her first baseball game last season thanks to FAAN. I would not risk taking her to a game if there wasn’t a nut free zone. (Benita)

 

 

Thank you to our amazing food allergy series host, Lori Sandler of Divvies Bakery, and clinical psychologist Dr. Jules Spotts, Ph.D!

 

Thanks also to our wonderful co-hosts today!

 

Kristin Beltaos, A Gift of Miles

Nick Katsoris, Loukoumi

Voula Katsoris, Loukoumi

Christy Matte, Quirky Fusion

Sloane Miller, Allergic Girl

Clarissa Nassar, The Posh Parent

Anne-Marie Nichols, This Mama Cooks! On a Diet

Carmen Staicer, Mom to the Screaming Masses

Herman Walker, Give It Up Fitness

Susan Weissman, Peanuts In Eden

 

 

See the original Talk here: http://tmotherhood.wpengine.com/talk/show/id/62178